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Outfir of the Day

OOTD Roundup: World MS Day 2021

May 30, 2021

“Two people are better off than one, for they can help each other succeed. If one person falls, the other can reach out and help. … A person standing alone can be attacked and defeated, but two can stand back-to-back and conquer. Three are even better, for a triple-braided cord is not easily broken.” Ecclesiastes 4:9, 12

And just like that, another World MS Day is upon us! It seems like a few months ago when I was celebrating this day of global solidarity and hope for the future for the first time. I kept my new tradition going and did an OOTD roundup to commemorate the occasion, because every day is worth celebrating. Truly. So I put on a bright orange dress (orange is the official color of MS awareness), my current pair of favorite shades and a smile and rocked this mini photoshoot. As symbolized in the second image, sometimes living with multiple sclerosis feels like the weight of the world is on your shoulders. There’s so much to worry about — the unknowns about the progression of my condition; managing my symptoms while balancing work, family and friends; and still trying to find joy in the process. Life with MS is not easy, but with my support squad by my side and looking to other people who are triumphing over the same struggles, it makes things better. I’m grateful for every one of them!

The World MS Day theme from 2020 to 2022 is “connections.” Last year, I chose to focus on my gals who supported me during the early stages of my MS diagnosis and journey. This year, I’m highlighting my fellow MS warriors who I’ve connected with via social media. Funny how the vast world of chronic illness can feel so small and inclusive! They have lifted me up and encouraged me by simply being who they are. These lovely ladies — seen below in their various shades of orange — include Kaci, the radiant roller skater; Ashleigh, a rose of an inspiration; Roxy, the remarkable MS fashionista; Diane, the dope DJ; Moyna, the marvelous motivator; Risha, the beautiful blogger; and Bianca, a beaming MSer who was recently diagnosed. Get to know about these inspiring women below, as they share what the MS community means to them and what makes them hopeful for the future.

Kaci Bell

• Name: Kaci Bell / @myelinmoxi
• Location: Dallas, TX
• Occupation: Realtor
• Diagnosed: August 2017

“The MS community means so much to me: It means knowledge of other’s experiences and perhaps a foretell of our own. It means instant friendships/connections — it’s hard enough to talk about this, it makes it so much easier to communicate with someone going through the same thing. It means strength and resilience, because we don’t let each other feel sorry for our disease, we continue to uplift each other and encourage positivity with our MS. It means having a bond, especially when wearing an article of clothing that mentions MS, it’s a talking point between strangers that is either knowledgeable or creates a relation between them. This community has been the most embracing one I’ve ever identified with and it’s been the most helpful resource since my diagnosis. 🥰

Ashleigh Rose

• Name: Ashleigh Rose / @arose
• Location: Florida
• Occupation: Founder of A Rose Collective
• Diagnosed: November 2018

“The MS community means (cliché warning) the world to me. When I was newly diagnosed, I didn’t find many positive accounts that showcased that yes, living with MS is tricky, but it’s not the end of my life. So I wanted to change that narrative. Be the person I needed for others. So I turned my personal IG account @arose into a safe space to share my journey and spread Multiple Sclerosis awareness. Opening myself up to the world, to the beautiful connections I’ve made, has been more than rewarding. It’s been life-changing. My story continues at A Rose Collective and I look forward to making many more MS Connections! Xx”

Roxy Chanel Murray

• Name: Roxy Chanel Murray / @multiplesclerosisfashionista
• Location: London, England – UK
• Occupation: MS Advocate and Podcaster
• Diagnosed: 2012

“The MS community means so much to me. They have become a massive part of my life. Bringing me so much joy, light, love and guidance on my journey. What makes me hopeful for the future is the progression that’s happening currently in the medical world with drugs and medical trials that show that there may be a brighter, happier future for all MSers. As well as the way the community has connected and created greater spaces, less loneliness and better well-rounded information resources available for all.”

Diane Palaganas

• Name: Diane Palaganas (a.k.a. DJ Danga Dang) / @_danga_dang
• Location: Long Beach, CA
• Occupation: Part-time DJ, Full-time WARRIOR
• Diagnosed: January 2016

“The MS community is an inspiration of hope and motivation. No one else understands the pain and fight we go through. When I see other warriors surviving and thriving with this disease, it makes me push and fight even harder. I believe anything is possible. I am open to all the possibilities of the future and am thankful for everyone with me on this journey.”

Moyna

• Name: Moyna / @lifewithmoyna
• Location: New York City, NY
• Occupation: Paralegal, Freelance Writer and Content Creator
• Diagnosed: December 2019

“The MS community is very warm and welcoming. I hope for the future is that more POC MS patients can be displayed. Seeing people who look like me in MS advertisement and other PR materials. Representation is SO important. It is helps to see others like you and know you are not alone!”

Risha Serrano

• Name: Risha Serrano / @reeshespieces_
• Location: Las Vegas, NV
• Occupation: Executive Administrator of a healthcare facility and Blogger
• Diagnosed: January 2018

“The MS community is strong, resilient and supportive of one another. Reassures me that I am not alone in my journey. It gives me hope that I can continue to live a fulfilling life despite having MS.”

Bianca Sair

• Name: Bianca Sair / @beeezzzyy_
• Location: Philadelphia, PA
• Occupation: Direct Support Professional
• Diagnosed: February 2021

“I’m new to the MS community so it’s still a lot to learn. I do hope to gain support as well as give support to my fellow warriors as well as gaining knowledge. I just hope a cure for MS is coming soon so we don’t have to continue to suffer inside.”

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